Holidays can be a good opportunity to strengthen familial ties and create enduring memories. If there is one family that can attest to this, it is Stuart Spielman, his wife Mona, and their two sons, who have been traveling together since the boys were children.
Zak’s 30th birthday
Just recently, Stuart was in New York City with his family to celebrate their son Zak’s 30th birthday. Zak, who has autism, couldn’t have been more delighted. The celebration became even more special as they joined with their younger son, who resides in Brooklyn, along with other nearby relatives.
It’s been a long journey to find ways to harmonize their collective experiences with that of Zak. The young man was diagnosed with autism just before reaching his second year. From an early age, the family faced numerous obstacles in creating a comfortable environment for him, especially during their travels. He is nonspeaking, which means he finds difficulty articulating his needs verbally.
But he communicates through alternative means, displaying his emotions and needs in other expressive ways. “For us, it’s about perseverance and cherishing our moments together as a family,” Spielman explained.
Most ASD families don’t embark on family vacations.
According to a 2019 survey by the International Board of Credentialing & Continuing Education Standards, 87% of families with an autistic child report that they don’t embark on family vacations. The reasons for this are multifaceted, ranging from sensory challenges and the need for routine to the sheer unpredictability of travel scenarios, which can be overwhelmingly stressful for autistic individuals.
And just like Spielmans, these families possess a deep yearning to traverse various landscapes and introduce their children to new environments. Unfortunately, the current travel industry falls short of catering to their unique needs.
A staggering 97% of these families have expressed dissatisfaction with existing travel accommodations. The industry must evolve to provide more inclusive and supportive options, ensuring that every family has the opportunity to create memorable travel experiences without facing undue hardship.
Prioritizing preferred activities
For the Zak family, the focus remains on fostering an environment where Zak can thrive. This includes prioritizing his preferred activities, such as leisurely strolls or engaging with water fountains, while sensibly avoiding scenarios that might cause him distress, like attending an opera.
One of Zak’s favorite pastimes while traveling includes immersing himself in the sensory delights of a beach visit. The feeling of soft, warm sand beneath his feet and the invigorating touch of the ocean waves are simple pleasures that bring him immense joy.
This sensory engagement is crucial for Zak’s well-being, enabling him to feel connected and content in his environment. Spielman reflects on these moments with poignant clarity, noting how the happiness and satisfaction derived from such experiences hold profound meaning.
Autism Support and Treatment in Chicago, IL
We at Illinois Autism are glad to have the opportunity to support families like the Spielmans. Our mission centers on providing comprehensive support and raising awareness for those affected by autism.
We strive to create resources and programs that help ASD families maneuver challenges they face, such as sensory and communication differences.